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CC BY-NC V4.0, Open Access
Conference proceeding
From Fax to Blockchain: Sharing Health Information Democratically and Safely
MEDINFO 2019: HEALTH AND WELLBEING E-NETWORKS FOR ALL, Vol.264, pp.1747-1748
Studies in Health Technology and Informatics
MEDINFO 2019, the 17th World Congress on Medical and Health Informatics (Lyon, France, 25/08/2019–30/08/2019)
2019
PMID: 31438324
Abstract
Information sharing in healthcare remains an unsolved problem despite a plethora of standards and architectures. Effective information sharing is difficult because of the heterogeneity of health information users and data sources, organisational, ethical and legislative constraints and the very demanding requirements of clinical practice. This paper argues that the key requirement of a viable sharing architecture is to support trust in the system and between stakeholders. It uses the concept of a "democratic" approach where citizens can control and verb the use and sharing of data about them and identify ways that some of the value extracted from the data could be assigned to the patient themselves. The reasons for the survival of obsolescent methods are used to inform the design of a proposed citizen-centric architecture using blockchain technology.
Details
- Title
- From Fax to Blockchain: Sharing Health Information Democratically and Safely
- Authors/Creators
- David Parry - Auckland University of Technology
- Contributors
- L OhnoMachado (Editor)B Seroussi (Editor)
- Publication Details
- MEDINFO 2019: HEALTH AND WELLBEING E-NETWORKS FOR ALL, Vol.264, pp.1747-1748
- Conference
- MEDINFO 2019, the 17th World Congress on Medical and Health Informatics (Lyon, France, 25/08/2019–30/08/2019)
- Series
- Studies in Health Technology and Informatics
- Publisher
- IOS Press
- Number of pages
- 2
- Identifiers
- 991005618140707891
- Copyright
- © 2019 International Medical Informatics Association (IMIA) and IOS Press.
- Murdoch Affiliation
- School of Information Technology
- Language
- English
- Resource Type
- Conference proceeding
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