Community-based participatory action research on rheumatic heart disease in an Australian Aboriginal homeland: Evaluation of the ‘On track watch’ project

Emma Haynes; Minitja Marawili; Brendan Makungun Marika; Alice G. Mitchell; Jodi Phillips; Dawn Bessarab; Roz Walker; Jeff Cook; Anna P. Ralph

doi:10.1016/j.evalprogplan.2019.02.010

Back

Community-based participatory action research on rheumatic heart disease in an Australian Aboriginal homeland: Evaluation of the ‘On track watch’ project

Journal article

Open access

Peer reviewed

Community-based participatory action research on rheumatic heart disease in an Australian Aboriginal homeland: Evaluation of the ‘On track watch’ project

Emma Haynes, Minitja Marawili, Brendan Makungun Marika, Alice G. Mitchell, Jodi Phillips, Dawn Bessarab, Roz Walker, Jeff Cook and Anna P. Ralph

Evaluation and Program Planning, Vol.74, pp.38-53

2019

DOI: https://doi.org/10.1016/j.evalprogplan.2019.02.010

PMID: 30849711

Files and links (2)

pdf

Community-based participatory action research on rheumatic heart disease in an Australian Aboriginal homeland - Evaluation of the ‘On track watch’ project6.79 MBDownload View

Published (Version of Record)CC BY-NC-ND V4.0, Open Access

url

https://doi.org/10.1016/j.evalprogplan.2019.02.010View

Published (Version of Record) Open

Abstract

Aboriginal health inequity

Australian Aboriginal

Co-design

Community-based participatory action research

Empowerment

Health systems

Indigenous

Knowledge exchange

Reciprocal knowledge co-creation

Rheumatic heart disease

Strategies to date have been ineffective in reducing high rates of rheumatic heart disease (RHD) in Australian Aboriginal people; a disease caused by streptococcal infections. A remote Aboriginal community initiated a collaboration to work towards elimination of RHD. Based in ‘both-way learning’ (reciprocal knowledge co-creation), the aim of this study was to co-design, implement and evaluate community-based participatory action research (CBPAR) to achieve this vision. Activities related to understanding and addressing RHD social determinants were delivered through an accredited course adapted to meet learner and project needs. Theory-driven evaluation linking CBPAR to empowerment was applied. Data collection comprised focus groups, interviews, observation, and co-development and use of measurement tools such as surveys. Data analysis utilised process indicators from national guidelines for Aboriginal health research, and outcome indicators derived from the Wallerstein framework. Findings include the importance of valuing traditional knowledges and ways of learning such as locally-meaningful metaphors to explore unfamiliar concepts; empowerment through critical thinking and community ownership of knowledge about RHD and research; providing practical guidance in implementing empowering and decolonising principles / theories. Lessons learned are applicable to next stages of the RHD elimination strategy which must include scale-up of community leadership in research agenda-setting and implementation.

Details

Title: Community-based participatory action research on rheumatic heart disease in an Australian Aboriginal homeland: Evaluation of the ‘On track watch’ project
Authors/Creators: Emma Haynes - The University of Western Australia
Minitja Marawili - Charles Darwin University
Brendan Makungun Marika - Menzies School of Health Research
Alice G. Mitchell - Menzies School of Health Research
Jodi Phillips - Charles Darwin University
Dawn Bessarab - The University of Western Australia
Roz Walker - The Kids Research Institute Australia
Jeff Cook - Ngaanyatjarra Health Service
Anna P. Ralph - Royal Darwin Hospital
Publication Details: Evaluation and Program Planning, Vol.74, pp.38-53
Publisher: Elsevier Ltd.
Identifiers: 991005570073307891
Murdoch Affiliation: Ngangk Yira Institute for Change
Language: English
Resource Type: Journal article

UN Sustainable Development Goals (SDGs)

This output has contributed to the advancement of the following goals:

Source: InCites

Metrics

3 File views/ downloads

72 Record Views

52 Times Cited - Web of Science

InCites Highlights

These are selected metrics from InCites Benchmarking & Analytics tool, related to this output

Collaboration types: Domestic collaboration
Citation topics: 1 Clinical & Life Sciences; 1.23 Antibiotics & Antimicrobials; 1.23.1051 Streptococcal Infections
Web Of Science research areas: Social Sciences, Interdisciplinary
ESI research areas: Social Sciences, general