Crisis preparation for people with multiple sclerosis in Australia: a cross-sectional survey of needs

C.H. Marck; B. Galna; I. van der Mei; L.L. Laslett; J. Tan; L. Gibbs; A.G. Kermode; D.I. Walker; Y.C. Learmonth

doi:10.1016/j.ijdrr.2024.104586

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Crisis preparation for people with multiple sclerosis in Australia: a cross-sectional survey of needs

Journal article

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Crisis preparation for people with multiple sclerosis in Australia: a cross-sectional survey of needs

C.H. Marck, B. Galna, I. van der Mei, L.L. Laslett, J. Tan, L. Gibbs, A.G. Kermode, D.I. Walker and Y.C. Learmonth

International journal of disaster risk reduction, Vol.109, 104586

2024

DOI: https://doi.org/10.1016/j.ijdrr.2024.104586

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Abstract

With increasing prevalence of disasters or crises such as fires, floods, and pandemics globally, people with disabilities are disproportionally at risk for short- and long-term consequences. We surveyed 1479 people with multiple sclerosis (MS) living in Australia to understand their needs for a crisis preparation plan. Only 17.4% already had a plan that met their needs, 31.0% and 6.5% indicated they would find creating or updating a plan helpful (respectively) and 14.1% were unsure. A third indicated they would need professional assistance with creating or updating their plan. This study shows that people with MS perceive the need to improve their individual preparedness for crises and the need for assistance in doing so. Community disaster preparedness and response plans should consider the particular needs of this patient population, and those living with MS-related disabilities and their carers should be included in the development of these plans.

Details

Title: Crisis preparation for people with multiple sclerosis in Australia: a cross-sectional survey of needs
Authors/Creators: C.H. Marck - The University of Melbourne
B. Galna - Murdoch University
I. van der Mei - Menzies Institute for Medical Research, University of Tasmania, Hobart, Australia
L.L. Laslett - Menzies Institute for Medical Research, University of Tasmania, Hobart, Australia
J. Tan - Murdoch University
L. Gibbs - Child & Community Wellbeing Unit, the Melbourne School of Population and Global Health, The University of Melbourne, Victoria, Australia
A.G. Kermode - Murdoch University, Institute for Immunology and Infectious Diseases
D.I. Walker - School of Biological Sciences, University of Western Australia, Perth, Western Australia, Australia
Y.C. Learmonth - Murdoch University, Centre for Molecular Medicine and Innovative Therapeutics
Publication Details: International journal of disaster risk reduction, Vol.109, 104586
Publisher: Elsevier Ltd
Identifiers: 991005672969407891
Murdoch Affiliation: Centre for Molecular Medicine and Innovative Therapeutics; School of Allied Health
Language: English
Resource Type: Journal article

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