Development of a referral pathway framework for fetal alcohol spectrum disorder in the Pilbara

James Fitzpatrick; Angela Dudley; Rebecca A. Pedruzzi; June Councillor; Kaashifah Bruce; Roz Walker

doi:10.22605/RRH5503

Back

Development of a referral pathway framework for fetal alcohol spectrum disorder in the Pilbara

Journal article

Open access

Peer reviewed

Development of a referral pathway framework for fetal alcohol spectrum disorder in the Pilbara

James Fitzpatrick, Angela Dudley, Rebecca A. Pedruzzi, June Councillor, Kaashifah Bruce and Roz Walker

Rural and remote health, Vol.20(2), 5503

2020

DOI: https://doi.org/10.22605/RRH5503

PMID: 32402204

Files and links (1)

pdf

Published1.06 MBDownload View

CC BY V4.0, Open Access

Abstract

Life Sciences & Biomedicine

Public, Environmental & Occupational Health

Science & Technology

Introduction: This article describes the process of mapping referral pathways to develop a localised resource to enhance the journey to diagnosis, treatment and support for fetal alcohol spectrum disorder (FASD) in a regional community setting. Methods: Over a 6-month period, a research officer engaged service providers in Port and South Hedland, Western Australia, using participatory action research methods. An iterative process included a service environment scan, interviews with service leaders and refinement of progressive drafts of the pathway through the Hedland FASD Network. A community reference group advised on cultural issues. Results: Referral pathways for interagency sectors (health, education, justice) were developed. Three pathway schematics and a companion four-page referral protocol were endorsed. The pathways were disseminated to all service providers and consensus was reached to trial the pathways within existing service systems. Conclusion: The process of referral pathway development provided a service mapping and gapping exercise to facilitate service integration. Evaluation of the resource will be conducted using the RE-AIM framework. The referral pathways template has been adapted and trialled by health and other professionals in several sites across Australia. The model developed for FASD can be applied to other neurodevelopmental disorders.

Details

Title: Development of a referral pathway framework for fetal alcohol spectrum disorder in the Pilbara
Authors/Creators: James Fitzpatrick - Princess Margaret Hospital for Children
Angela Dudley - The Kids Research Institute Australia
Rebecca A. Pedruzzi - The Kids Research Institute Australia
June Councillor - Aboriginal Health Council of South Australia
Kaashifah Bruce - The Kids Research Institute Australia
Roz Walker - Murdoch University, Ngangk Yira Institute for Change
Publication Details: Rural and remote health, Vol.20(2), 5503
Publisher: College of Medicine and Dentistry. James Cook University
Number of pages: 10
Grant note: Pilbara Aboriginal Health Planning Forum Hedland FASD Network BHP grant
Identifiers: 991005687466607891
Murdoch Affiliation: Ngangk Yira Institute for Change
Language: English
Resource Type: Journal article

UN Sustainable Development Goals (SDGs)

This output has contributed to the advancement of the following goals:

Source: InCites

Metrics

22 Record Views

6 Times Cited - Web of Science

InCites Highlights

These are selected metrics from InCites Benchmarking & Analytics tool, related to this output

Collaboration types: Domestic collaboration
Citation topics: 1 Clinical & Life Sciences; 1.100 Substance Abuse; 1.100.1284 Prenatal Substance Exposure
Web Of Science research areas: Public, Environmental & Occupational Health
ESI research areas: Social Sciences, general