Development of the Epilepsy Risk Awareness scale (ERA scale) for people with epilepsy

Andreas Braun; Sally Kendall; Christine Cole; Nigel Smeeton; Heather Angus-Leppan

doi:10.1016/j.seizure.2017.02.005

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Development of the Epilepsy Risk Awareness scale (ERA scale) for people with epilepsy

Journal article

Open access

Peer reviewed

Development of the Epilepsy Risk Awareness scale (ERA scale) for people with epilepsy

Andreas Braun, Sally Kendall, Christine Cole, Nigel Smeeton and Heather Angus-Leppan

Seizure (London, England), Vol.46, pp.13-18

2017

DOI: https://doi.org/10.1016/j.seizure.2017.02.005

PMID: 28214711

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Abstract

Epilepsy

Risk

Checklist

Seizure

Scale

Personal safety

Health care

Quality of life

Purpose Quality of life in people with epilepsy depends on balancing protection from risks and avoiding unnecessary restrictions. The Epilepsy Risk Awareness Checklist (ERAC) was developed to summarise an individual’s safety, health care and quality of life and to facilitate communication between professionals. Although effective, the existing Checklist required quantification and shortening to increase its utility, particularly as a longitudinal tool for measuring and communicating changes over time. Methods 5 clinical experts, 3 people with epilepsy and 5 carers assessed the importance of each item on the ERAC questionnaire in a two-round Delphi survey. The refined Epilepsy Risk Awareness scale (ERA scale) was piloted in 30 patients to obtain an overall and sub-scale score for personal safety, health care, and quality of life domains, and was compared with the validated Seizure Severity Scale and Epilepsy Self-Management Scale. Results ERAC was shortened from 69 to 48 items to take 15–20 min for completion. Pilot results showed good internal consistency for the overall ERA scale, for the Personal Safety and Health Care subscales, but less for the Quality of Life subscale. There was strong association between ERA scale and the Epilepsy Self-Management Scale, but little relationship with Seizure Severity Scale scores, which focus on individual seizures. User ratings were high. Conclusions The ERA scale has been shortened and quantified to provide an objective measure of the risks and safety profile in people with epilepsy. The scale will be further tested for intra-rater variability and utility.

Details

Title: Development of the Epilepsy Risk Awareness scale (ERA scale) for people with epilepsy
Authors/Creators: Andreas Braun - University of Hertfordshire
Sally Kendall - University of Kent
Christine Cole - Central London Community Healthcare NHS Trust
Nigel Smeeton - University of Hertfordshire
Heather Angus-Leppan - Royal Free London NHS Foundation Trust
Publication Details: Seizure (London, England), Vol.46, pp.13-18
Publisher: Elsevier
Number of pages: 6
Grant note: Royal Free Charity and the Royal Free London NHS Foundation Trust University of Hertfordshire East and North Hertfordshire Clinical Commissioning Group
Identifiers: 991005569324607891
Murdoch Affiliation: Ngangk Yira Institute for Change
Language: English
Resource Type: Journal article

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Collaboration types: Domestic collaboration
Citation topics: 1 Clinical & Life Sciences; 1.222 Epilepsy & Seizures; 1.222.143 Epilepsy Treatment
Web Of Science research areas: Clinical Neurology; Neurosciences
ESI research areas: Neuroscience & Behavior