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Journal article
Family caregivers bereaved by voluntary-assisted dying with a focus on motor neurone disease: the hidden patients
Palliative Care and Social Practice, Vol.17
2023
Abstract
Voluntary-assisted dying (VAD) refers to one form of hastened death, made by a person with decision-making capacity. In Australia, it encompasses self-administration of a lethal drug (elsewhere known as physician-assisted suicide) and practitioner administration (elsewhere known as euthanasia) to a person with a terminal illness.1–3 VAD is increasingly becoming legalized throughout the world such as New Zealand, 11 states of the United States, Canada, as well as several European jurisdictions. Such end-of-life laws have been passed in six Australian states with implementation presently at various stages across the country.2–4
In a person-centred care system, the patient’s needs and wishes are foremost with the treatment team, while opinions of family caregivers are often not as readily sought or considered.2 Caregiver engagement in treatment decision-making may play a central role in how the caregiver responds to the course of the VAD and subsequently, this may affect bereavement outcomes.5 Therefore, it is important to understand the impact that this choice at end-of-life has on grief and bereavement in family caregivers.
Details
- Title
- Family caregivers bereaved by voluntary-assisted dying with a focus on motor neurone disease: the hidden patients
- Authors/Creators
- Margaret SealeySamar M. Aoun - La Trobe University
- Publication Details
- Palliative Care and Social Practice, Vol.17
- Publisher
- SAGE Publications
- Identifiers
- 991005618764307891
- Copyright
- © 2023 The Author(s)
- Murdoch Affiliation
- School of Allied Health
- Resource Type
- Journal article
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