Journal article
Genomic testing for human health and disease across the life cycle: Applications and ethical, legal, and social challenges
Frontiers in Public Health, Vol.7
2019
Abstract
The expanding use of genomic technologies encompasses all phases of life, from the embryo to the elderly, and even the posthumous phase. In this paper, we present the spectrum of genomic healthcare applications, and describe their scope and challenges at different stages of the life cycle. The integration of genomic technology into healthcare presents unique ethical issues that challenge traditional aspects of healthcare delivery. These challenges include the different definitions of utility as applied to genomic information; the particular characteristics of genetic data that influence how it might be protected, used and shared; and the difficulties applying existing models of informed consent, and how new consent models might be needed.
Details
- Title
- Genomic testing for human health and disease across the life cycle: Applications and ethical, legal, and social challenges
- Authors/Creators
- G.A. Bilkey (Author/Creator) - Government of Western AustraliaB.L. Burns (Author/Creator) - Government of Western AustraliaE.P. Coles (Author/Creator) - Government of Western AustraliaF.L. Bowman (Author/Creator) - Government of Western AustraliaJ.P. Beilby (Author/Creator) - The University of Western AustraliaN.S. Pachter (Author/Creator) - The University of Western AustraliaG. Baynam (Author/Creator) - Government of Western AustraliaH.J.S. Dawkins (Author/Creator)K.J. Nowak (Author/Creator) - The University of Western AustraliaT.S. Weeramanthri (Author/Creator) - The University of Western Australia
- Publication Details
- Frontiers in Public Health, Vol.7
- Publisher
- Frontiers Media
- Identifiers
- 991005542358307891
- Copyright
- © 2019 The Authors
- Murdoch Affiliation
- Sir Walter Murdoch School of Public Policy and International Affairs
- Language
- English
- Resource Type
- Journal article
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Source: InCites
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InCites Highlights
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- Collaboration types
- Domestic collaboration
- Citation topics
- 1 Clinical & Life Sciences
- 1.189 Genome Studies
- 1.189.597 Genetic Testing
- Web Of Science research areas
- Public, Environmental & Occupational Health
- ESI research areas
- Social Sciences, general