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Published (Version of Record)CC BY V4.0, Open Access
Journal article
How embedded is public involvement in mainstream health research in England a decade after policy implementation? A realist evaluation
Journal of health services research & policy, Vol.23(2), pp.98-106
2018
PMCID: PMC5901416
PMID: 29653504
Abstract
Objectives: To explore how embedded patient and public involvement is within mainstream health research following two decades of policy-driven work to underpin health research with patient and public involvement in England.
Methods: Realist evaluation using Normalization Process Theory as a programme theory to understand what enabled patient and public involvement to be embedded as normal practice. Data were collected through a national scoping and survey, and qualitative methods to track patient and public involvement processes and impact over time within 22 nationally funded research projects.
Results: In research studies that were able to create reciprocal working relationships and to embed patient and public involvement this was contingent on: the purpose of patient and public involvement being clear; public contributors reflecting research end-beneficiaries; researchers understanding the value of patient and public involvement; patient and public involvement opportunities being provided throughout the research and ongoing evaluation of patient and public involvement. Key contested areas included: whether to measure patient and public involvement impact; seeking public contributors to maintain a balance between being research-aware and an outsider standpoint seen as authentically' lay; scaling-up patient and public involvement embedded within a research infrastructure rather than risk token presence and whether patient and public involvement can have a place within basic science.
Conclusions: While patient and public involvement can be well-integrated within all types of research, policy makers should take account of tensions that must be navigated in balancing moral and methodological imperatives.
Details
- Title
- How embedded is public involvement in mainstream health research in England a decade after policy implementation? A realist evaluation
- Authors/Creators
- Patricia Wilson - University of KentElspeth Mathie - University of HertfordshireFiona Poland - University of East AngliaJulia Keenan - University of East AngliaAmanda Howe - University of East AngliaDiane Munday - University of HertfordshireSally Kendall - University of KentMarion Cowe - University of HertfordshireSophie Staniszewska - University of WarwickClaire Goodman - University of Hertfordshire
- Publication Details
- Journal of health services research & policy, Vol.23(2), pp.98-106
- Publisher
- SAGE Publications
- Number of pages
- 9
- Grant note
- National Institute for Health Research (NIHR), under the Health Services and Delivery Research Programme
- Identifiers
- 991005569338707891
- Copyright
- © The Author(s) 2017
- Murdoch Affiliation
- Ngangk Yira Institute for Change
- Language
- English
- Resource Type
- Journal article
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- ESI research areas
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