Is dignity therapy feasible to enhance the end of life experience for people with motor neurone disease and their family carers?

B. Bentley; S. Aoun; M. O'Connor; L.J. Breen; H.M. Chochinov

doi:10.1186/1472-684X-11-18

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Is dignity therapy feasible to enhance the end of life experience for people with motor neurone disease and their family carers?

Journal article

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Peer reviewed

Is dignity therapy feasible to enhance the end of life experience for people with motor neurone disease and their family carers?

B. Bentley, S. Aoun, M. O'Connor, L.J. Breen and H.M. Chochinov

BMC Palliative Care, Vol.11(1)

2012

DOI: https://doi.org/10.1186/1472-684X-11-18

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Abstract

Background Development of interventions that address psychosocial and existential distress in people with motor neurone disease (MND) or that alleviate caregiver burden in MND family carers have often been suggested in the research literature. Dignity therapy, which was developed to reduce psychosocial and existential distress at the end of life, has been shown to benefit people dying of cancer and their families. These results may not be transferable to people with MND. The objectives of this study are to assess the feasibility, acceptability and potential effectiveness of dignity therapy to enhance the end of life experience for people with motor neurone disease and their family carers. Methods/design This is a cross-sectional study utilizing a single treatment group and a pre/post test design. The study population will comprise fifty people diagnosed with MND and their nominated family carers. Primarily quantitative outcomes will be gathered through measures assessed at baseline and at approximately one week after the intervention. Outcomes for participants include hopefulness, spirituality and dignity. Outcomes for family carers include perceived caregiver burden, hopefulness and anxiety/depression. Feedback and satisfaction with the intervention will be gathered through a questionnaire. Discussion This detailed research will explore if dignity therapy has the potential to enhance the end of life experience for people with MND and their family carers, and fill a gap for professionals who are called on to address the spiritual, existential and psychosocial needs of their MND patients and families.

Details

Title: Is dignity therapy feasible to enhance the end of life experience for people with motor neurone disease and their family carers?
Authors/Creators: B. Bentley (Author/Creator) - Curtin University
S. Aoun (Author/Creator) - Curtin University
M. O'Connor (Author/Creator) - Curtin University
L.J. Breen (Author/Creator) - Curtin University
H.M. Chochinov (Author/Creator) - University of Manitoba
Publication Details: BMC Palliative Care, Vol.11(1)
Publisher: BioMed Central
Identifiers: 991005540266507891
Copyright: © 2012 Bentley et al.
Murdoch Affiliation: Murdoch University
Language: English
Resource Type: Journal article

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Collaboration types: Domestic collaboration; International collaboration
Citation topics: 1 Clinical & Life Sciences; 1.52 Neurodegenerative Diseases; 1.52.765 ALS Mechanisms
Web Of Science research areas: Health Care Sciences & Services; Health Policy & Services
ESI research areas: Social Sciences, general