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Journal article
Notification of acute rheumatic fever and rheumatic heart disease in hospitalised people in the Midwest region of Western Australia, 2012-2022: a retrospective cohort study
Medical journal of Australia, Vol.221(9), pp.493-494
2024
PMID: 39364566
Abstract
A cute rheumatic fever (ARF) and rheumatic heart disease (RHD) are caused by untreated group A streptococcus infections. Their prevalence is much higher among First Nations people than other Australians. 1 Treatment guidelines recommend that people with ARF or RHD be hospitalised (RHD) and notified to jurisdictional RHD registers (ARF, RHD); early diagnosis is associated with better clinical outcomes. 2,3 In Western Australia, the notification by clinicians of new ARF and RHD diagnoses has been mandatory since 2009 and 2015 respectively. 2,4 WA RHD Register staff record demographic and clinical details for each case, and commence recall and reminder services for people with ARF or RHD. For people who are hospitalised, clinical coders enter discharge summary information into the WA Hospital Morbidity Data System (HMDS), using International Classification of Diseases, tenth revision, Australian modification (ICD-10-AM) codes (ARF: I00– I02; RHD: I05–I09). The register should also be notified of any person hospitalised with ARF or RHD. In 2020, we estimated that 54% of cases of RHD in First Nations people and 99% of cases in non-Indigenous people in WA were not recorded in the register, but no person-identifiable regional analyses or validation studies have been undertaken. 5 For our retrospective administrative data analysis, we validated ARF and RHD hospitalisations in the remote Midwest region of WA, calculated RHD register notification rates, and examined demographic and clinical factors associated with notification. [Correction added on 9 October 2024, after first online publication: this sentence has been corrected.] All hospitalisations with ARF or RHD in the Midwest region during 1 May 2012 – 30 April 2022 were identified in the HMDS. Medical records for the admissions were requested (including discharge summaries, pathology results, specialist reports, emergency presentation and inpatient paper medical records), reviewed, and validated by resident medical officers, with cardiologist support as required. Records that could not be obtained or which indicated that the case did not meet the criteria for possible, probable, or confirmed diagnosis of ARF or RHD 2 were excluded. First Nations people were identified from information in clinical notes in paper medical records and hospital admission records (in which Indigenous status is self-reported or recorded by the clinician).
Details
- Title
- Notification of acute rheumatic fever and rheumatic heart disease in hospitalised people in the Midwest region of Western Australia, 2012-2022: a retrospective cohort study
- Authors/Creators
- Ingrid Stacey - The University of Western AustraliaYolande Knight - WA Country Hlth Serv, Geraldton, WA, AustraliaClaire M. X. Ong - WA Country Hlth Serv, Geraldton, WA, AustraliaAmy Lee - WA Country Hlth Serv, Geraldton, WA, AustraliaSuresh Karuppannan - WA Country Hlth Serv, Geraldton, WA, AustraliaAllison Christou - WA Country Hlth Serv, Rheumat Heart Dis Register & Control Program, Au, WA, AustraliaJudith M. Katzenellenbogen - The University of Western Australia
- Publication Details
- Medical journal of Australia, Vol.221(9), pp.493-494
- Publisher
- Wiley
- Number of pages
- 2
- Grant note
- 2005398 / National Health and Medical Research Council Postgraduate Scholarship; National Health & Medical Research Council (NHMRC) of Australia University of Western Australia 102043 / Judith Katzenellenbogen holds a Heart Foundation Future Leader Fellowship
- Identifiers
- 991005884838407891
- Copyright
- © 2024 The Author(s).
- Murdoch Affiliation
- Ngangk Yira Institute for Change
- Language
- English
- Resource Type
- Journal article
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