Journal article
OMERACT 2018 Modified Patient-reported outcome domain core set in the life impact area for adult idiopathic inflammatory myopathies
The Journal of Rheumatology, Vol.46(10), pp.1351-1354
2019
Abstract
Objective. To present and vote on a myositis modified patient-reported outcome core domain set in the life impact area at the Outcome Measures in Rheumatology (OMERACT) 2018.
Methods. Based on results from international focus groups and Delphi surveys, a draft core set was developed.
Results. Domains muscle symptoms, fatigue, level of physical activity, and pain reached ≥ 70% consensus and were mandatory to assess in all trials. Domains lung, joint, and skin symptoms were mandatory in specific circumstances. This core set was endorsed by > 85% at OMERACT 2018.
Conclusion. We propose a life impact core set for patients with idiopathic inflammatory myopathies and will proceed with instrument selections.
Details
- Title
- OMERACT 2018 Modified Patient-reported outcome domain core set in the life impact area for adult idiopathic inflammatory myopathies
- Authors/Creators
- M. Regardt (Author/Creator) - Karolinska InstitutetC.A. Mecoli (Author/Creator)J.K. Park (Author/Creator) - Karolinska InstitutetI. de Groot (Author/Creator) - Patient UKC. Sarver (Author/Creator) - Patient UKM. Needham (Author/Creator) - Murdoch UniversityM. de Visser (Author/Creator) - University of AmsterdamB. Shea (Author/Creator) - University of OttawaC.O. Bingham (Author/Creator) - University of OttawaI.E. Lundberg (Author/Creator) - Karolinska InstitutetY.W. Song (Author/Creator) - Internal MedicineL. Christopher-Stine (Author/Creator) - Johns Hopkins UniversityH. Alexanderson (Author/Creator) - Karolinska Institutet
- Publication Details
- The Journal of Rheumatology, Vol.46(10), pp.1351-1354
- Publisher
- Journal of Rheumatology Publishing Co. Ltd.
- Identifiers
- 991005542399407891
- Copyright
- © 2019 by The Journal of Rheumatology
- Murdoch Affiliation
- Murdoch University
- Language
- English
- Resource Type
- Journal article
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- Collaboration types
- Domestic collaboration
- International collaboration
- Citation topics
- 1 Clinical & Life Sciences
- 1.106 Rheumatology
- 1.106.1684 Dermatomyositis
- Web Of Science research areas
- Rheumatology
- ESI research areas
- Clinical Medicine