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Patients’ perspectives on services for epilepsy: a survey of patient satisfaction, preferences and information provision in 2394 people with epilepsy
Journal article   Open access   Peer reviewed

Patients’ perspectives on services for epilepsy: a survey of patient satisfaction, preferences and information provision in 2394 people with epilepsy

Kingsley Poole, Nicholas Moran, Gail Bell, Juliet Solomon, Sally Kendall, Mark McCarthy, David McCormick, Lina Nashef, Anthony Johnson, Josemir Sander, …
Seizure (London, England), Vol.9(8), pp.551-558
2000
DOI: https://doi.org/10.1053/seiz.2000.0450
PMID: 11162752
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Abstract

epilepsy health care quality, access, and evaluation health services needs and demand health services research patient satisfaction primary care questionnaire secondary care UK
The objectives of this study were to provide a comprehensive survey of satisfaction with care, care preferences and information provision for patients with epilepsy, and to formulate recommendations for the development of epilepsy services based on the findings. A questionnaire was distributed to 4620 patients who were currently receiving antiepileptic drugs for epilepsy, regardless of aetiology, duration or severity. Two different samples of patients with epilepsy were questioned: the first an unselected sample drawn from primary care, and the second consisting of consecutive patients drawn from hospital clinics. There were 2394 responses to the questionnaire. Satisfaction with primary and hospital care was high, both overall and for specific aspects. However, two major shortcomings were identified. First, few respondents felt that their care was shared between hospital and GP. Secondly, provision of information about epilepsy was perceived to be poor, particularly by the elderly. Younger patients and patients with severe epilepsy had a higher satisfaction with and preference for hospital care, whereas older age groups were more satisfied with and preferred primary care. Patients’ main reasons for preferring primary care were that it was more personal and the GP was more familiar with them, and secondary care was preferred because the hospital doctor knew more about epilepsy. In conclusion, we have conducted the largest representative UK survey of patients’ perceptions and views of the care available for epilepsy. Although patient satisfaction was high, information provision is poor and the shared care model is not operating effectively. We recommend that an emphasis be placed on methods for improving the interface between primary and secondary care. The setting up of hospital epilepsy centres, as recommended by the recently published Clinical Standards Advisory Group report on epilepsy , would provide a focus for these efforts and for information provision.

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Collaboration types
Domestic collaboration
Citation topics
1 Clinical & Life Sciences
1.222 Epilepsy & Seizures
1.222.143 Epilepsy Treatment
Web Of Science research areas
Clinical Neurology
Neurosciences
ESI research areas
Neuroscience & Behavior
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