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Revealing Meaning From Story: The Application of Narrative Inquiry to Explore the Factors That Influence Decision Making in Relation to the Withdrawal of Life-Sustaining Treatment in The Intensive Care Unit
Journal article   Open access   Peer reviewed

Revealing Meaning From Story: The Application of Narrative Inquiry to Explore the Factors That Influence Decision Making in Relation to the Withdrawal of Life-Sustaining Treatment in The Intensive Care Unit

Fiona Foxall, Deborah Sundin, Amanda Towell-Barnard, Bev Ewens, Vivien Kemp and Davina Porock
International journal of qualitative methods, Vol.20
2021
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CC BY-NC V4.0 Open Access

Abstract

Social Sciences Social Sciences - Other Topics Social Sciences, Interdisciplinary
This paper considers the effectiveness of narrative inquiry as a research method in collecting and analyzing stories from a purposive sample of intensive care nurses and doctors, regarding their perceptions of the factors that influence decision-making in relation to the withdrawal of life sustaining treatment. Delaying the withdrawal of treatment when it is clearly indicated, may result in unnecessary patient suffering at the end of life, distress for the family as well as moral distress for staff. In narrative inquiry participants' first-hand accounts of their experiences are told through story; the focus of analysis is the story, with the story becoming the object of investigation. Initially, participants' stories were restoried to produce narratives that were co-constructed between researcher and participant. Narrative analysis, employing McCormack's lenses and the interconnected analytical lenses, facilitated vertical analysis of each narrative. Horizontal analysis through thematic analysis facilitated the derivation of themes that were consistent within or across narratives. We detail here how narrative inquiry methodology was effective in revealing the meaning participants gave to their decision-making experiences through story, offering a broader understanding of the factors that impact on decision-making regarding the withdrawal of life-sustaining treatment. The study's findings were powerful, derived from narratives rich and thick in description, depicting a multi-dimensional interpretation of the participants' perceptions of their decision-making experiences. Participants experienced transformative learning through the narrative process, which led to changes in ways of working in the study setting. Recommendations arose to enhance clinical practice and education in this vital area of practice as a result of this study. The application of narrative inquiry enabled the discovery of significant findings as an avenue to challenge legislation and current opinion regarding the autonomy and role of the family in decision-making.

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Citation topics
1 Clinical & Life Sciences
1.112 Palliative Care
1.112.237 End-of-Life Care
Web Of Science research areas
Social Sciences, Interdisciplinary
ESI research areas
Social Sciences, general
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