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Published (Version of Record)CC BY V4.0, Open
Journal article
Staying moving, staying strong: Protocol for developing culturally appropriate information for Aboriginal people with osteoarthritis, rheumatoid arthritis, lupus and gout
PloS one, Vol.16(12), p.e0261670
2021
PMID: 34941954
Abstract
Introduction
Addressing disparities in arthritis care is an important yet unmet health need for Aboriginal and Torres Strait Islander people in Australia (respectfully Aboriginal people herewith). Despite the significant prevalence and burden of arthritis within Aboriginal communities, access to care for arthritis is low. One means to reduce existing disparities in health care is to address current challenges relating to the appropriateness and acceptability of health care information resources for Aboriginal people. Health information sources can help to empower patients and their families to have greater involvement in their care and to engage in self-management of their condition. Despite an extensive range of arthritis information resources being available, currently no resources have been culturally adapted and developed in collaboration with Aboriginal consumers with arthritis. This paper outlines the processes that will be undertaken within the Staying Moving, Staying Strong project. This project aims to develop culturally secure arthritis information for Aboriginal people with osteoarthritis, rheumatoid arthritis, lupus and gout.
Methods and analysis
The overarching principle guiding this project is cultural security, referring to the incorporation of processes such that the research will not compromise the cultural rights, values and expectations of Aboriginal people. This project will prioritise partnerships, community engagement, community benefit, sustainability, transferability, and capacity building and therefore uphold the cultural rights and values of Aboriginal people. In this six-phase project we will; 1) Establish a community reference group and advisory committee; 2) Explore the health information needs and preferences of Aboriginal people with arthritis; 3) Synthesise the existing key recommendations in high quality clinical practice guidelines on arthritis care; 4) Culturally adapt key clinical recommendations; 5) Develop culturally appropriate arthritis resources and; 6) Qualitatively evaluate the developed resources.
Details
- Title
- Staying moving, staying strong: Protocol for developing culturally appropriate information for Aboriginal people with osteoarthritis, rheumatoid arthritis, lupus and gout
- Authors/Creators
- Penny O'Brien - The University of MelbourneBrooke Conley - The University of MelbourneSamantha Bunzli - The University of MelbourneJonathan Bullen - Curtin UniversityJuli Coffin - The Kids Research Institute AustraliaJennifer Persaud - Arthritis AustraliaTilini Gunatillake - The University of MelbourneMichelle M. Dowsey - The University of MelbournePeter F. Choong - The University of MelbourneIvan Lin - Univ Western Australia, Western Australian Ctr Rural Hlth, Geraldton, WA, Australia
- Publication Details
- PloS one, Vol.16(12), p.e0261670
- Publisher
- Public Library Science
- Number of pages
- 13
- Grant note
- GA76063 / Australian Commonwealth Government; Australian Government
- Identifiers
- 991005560446107891
- Copyright
- © 2021 O’Brien et al.
- Murdoch Affiliation
- Ngangk Yira Institute for Change
- Language
- English
- Resource Type
- Journal article
UN Sustainable Development Goals (SDGs)
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Source: InCites
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InCites Highlights
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- Collaboration types
- Domestic collaboration
- Citation topics
- 1 Clinical & Life Sciences
- 1.106 Rheumatology
- 1.106.188 Rheumatoid Arthritis
- Web Of Science research areas
- Rheumatology
- ESI research areas
- Clinical Medicine