Journal article
The New Zealand neuromuscular disease registry
Journal of Clinical Neuroscience, Vol.19(12), pp.1749-1750
2012
Abstract
The development of effective treatments for neuromuscular diseases is a significant challenge due to difficulties in identifying adequate numbers of patients for clinical trials. Low patient numbers in these rare diseases also has an effect when establishing sound clinical practices based on experience gained from patients with similar diagnosis. The Muscular Dystrophy Association of New Zealand (MDA), working in consort with interested clinicians has established the New Zealand Neuromuscular Disease (NZ NMD) Registry in order to help address these problems. The NZ NMD Registry is exceptional in that it comprises one registry for all neuromuscular conditions and will significantly benefit both patients with neuromuscular disease and their clinicians.
Details
- Title
- The New Zealand neuromuscular disease registry
- Authors/Creators
- M. Rodrigues (Author/Creator)G. Hammond-Tooke (Author/Creator)A. Kidd (Author/Creator)D. Love (Author/Creator)R. Patel (Author/Creator)H. Dawkins (Author/Creator)M. Bellgard (Author/Creator)R. Roxburgh (Author/Creator)
- Publication Details
- Journal of Clinical Neuroscience, Vol.19(12), pp.1749-1750
- Publisher
- Churchill Livingstone
- Identifiers
- 991005543179907891
- Copyright
- © 2012 Elsevier Ltd.
- Murdoch Affiliation
- Centre for Comparative Genomics
- Language
- English
- Resource Type
- Journal article
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- Collaboration types
- Industry collaboration
- Domestic collaboration
- International collaboration
- Citation topics
- 1 Clinical & Life Sciences
- 1.79 Molecular & Cell Biology - Physiology
- 1.79.1811 Myotonic Dystrophy Mechanisms
- Web Of Science research areas
- Clinical Neurology
- Neurosciences
- ESI research areas
- Neuroscience & Behavior