Journal article
The impact of the Australian Black Summer Bushfires and the COVID-19 pandemic on wellbeing in persons with multiple sclerosis; preparation for future and ongoing crises
Disability and Rehabilitation, Vol.45(4), pp.630-643
2023
Abstract
Purpose
The Australian multiple sclerosis (MS) community experienced two recent major crises, widespread bushfires and the COVID 19 pandemic. We aimed to understand the needs of persons with MS during times of crisis.
Materials and methods
A consumer-directed mixed-method study. We included an online survey, semi-structured interviews, and a workshop with persons with MS, carers, healthcare professionals, and disability advocates. Data were collected via: (1) 176 people completing online surveys to identify crisis concerns and communications, (2) 29 people completing online interviews on bushfire and pandemic impact, and (3) 13 people participating in a crises-priorities workshop. Descriptive data were calculated for survey response, and a general inductive analytical approach was taken with interview and workshop responses.
Results
The most significant concerns were bushfire smoke exposure and disease-modifying-medication and susceptibility to COVID-19 (66% and 63% mean concern score, respectively). Interviews indicated crises experiences from the bushfires, and the pandemic overlapped respective of changes in mood and symptom stability. For bushfires, a need for future preparations, and for the pandemic, the benefits of social restrictions, disclosing personal health information and increased care burden were important.
Conclusions
Multiple crises challenged the MS community but offered lessons for healthcare in future crises. Continued progress in centralised crisis information, with considered use of telehealth and rural healthcare support, is needed.
Details
- Title
- The impact of the Australian Black Summer Bushfires and the COVID-19 pandemic on wellbeing in persons with multiple sclerosis; preparation for future and ongoing crises
- Authors/Creators
- Y.C. Learmonth (Author/Creator) - Murdoch UniversityA. Hunter (Author/Creator) - Centre for Health Equity, Melbourne School of Population & Global Health, Melbourne, Australia.L. Gibbs (Author/Creator) - Child and Community Wellbeing Unit, Centre for Health Equity, Melbourne School of Population & Global Health, Melbourne, Australia.D. Walker (Author/Creator) - The University of Western AustraliaA.G. Kermode (Author/Creator) - Murdoch UniversityC.H. Marck (Author/Creator) - Centre for Health Equity, Melbourne School of Population & Global Health, Melbourne, Australia.
- Publication Details
- Disability and Rehabilitation, Vol.45(4), pp.630-643
- Publisher
- Taylor & Francis
- Identifiers
- 991005543866907891
- Murdoch Affiliation
- Centre for Molecular Medicine and Innovative Therapeutics; School of Allied Health; Centre for Healthy Ageing
- Language
- English
- Resource Type
- Journal article
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Source: InCites
Metrics
45 Record Views
InCites Highlights
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- Collaboration types
- Domestic collaboration
- Citation topics
- 1 Clinical & Life Sciences
- 1.203 Neuromuscular Disorders
- 1.203.147 Multiple Sclerosis
- Web Of Science research areas
- Rehabilitation
- ESI research areas
- Social Sciences, general