The information needs of carers of adults diagnosed with epilepsy

Sally Kendall; Diane Thompson; Lynette Couldridge

doi:10.1016/j.seizure.2003.12.003

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The information needs of carers of adults diagnosed with epilepsy

Journal article

Open access

Peer reviewed

The information needs of carers of adults diagnosed with epilepsy

Sally Kendall, Diane Thompson and Lynette Couldridge

Seizure (London, England), Vol.13(7), pp.499-508

2004

DOI: https://doi.org/10.1016/j.seizure.2003.12.003

PMID: 15324830

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Abstract

Carers

Epilepsy

Epilepsy services

Information

Self-efficacy

Aim The aim of the study was to explore the information needs of informal carers, and how information from health professionals can become more effective for families caring for people with epilepsy. Methods: A combined methodology was used, comprising an interview study and a survey. Twelve in-depth interviews with carers were carried out. The questionnaire was developed using the interview data, to which 70 carers responded. Results Four main themes have been drawn from the study. • Carers’ of people with epilepsy have a need for improved and more appropriate levels of information giving by health professionals in both primary and secondary care • Carers’ perceived self-efficacy expectations in seeking information are positive but they do not always feel listened to • Carers’ prefer to receive information in a one-to-one setting but also need information from formats other than leaflets • Carers’ perceive barriers to having their information needs met, such as their needs being unrecognised in relation to the person with epilepsy.

Details

Title: The information needs of carers of adults diagnosed with epilepsy
Authors/Creators: Sally Kendall - University of Hertfordshire
Diane Thompson - University of Hertfordshire
Lynette Couldridge - Epilepsy Society
Publication Details: Seizure (London, England), Vol.13(7), pp.499-508
Publisher: Elsevier Ltd
Identifiers: 991005569329307891
Murdoch Affiliation: Ngangk Yira Institute for Change
Language: English
Resource Type: Journal article

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Citation topics: 1 Clinical & Life Sciences; 1.222 Epilepsy & Seizures; 1.222.143 Epilepsy Treatment
Web Of Science research areas: Clinical Neurology; Neurosciences
ESI research areas: Neuroscience & Behavior